{"id":372913,"date":"2026-04-15T17:21:01","date_gmt":"2026-04-15T16:21:01","guid":{"rendered":"https:\/\/zakrasnejsivimperk.cz\/?p=372913"},"modified":"2026-04-15T17:21:01","modified_gmt":"2026-04-15T16:21:01","slug":"vseobecna-zdravotni-pojistovna-moderni-lecba-v-cesku-vyrazne-zlepsuje-kvalitu-zivota-lidi-s-hemofilii","status":"publish","type":"post","link":"https:\/\/zakrasnejsivimperk.cz\/?p=372913","title":{"rendered":"V\u0160EOBECN\u00c1 ZDRAVOTN\u00cd POJI\u0160\u0164OVNA: Modern\u00ed l\u00e9\u010dba v \u010cesku v\u00fdrazn\u011b zlep\u0161uje kvalitu \u017eivota lid\u00ed s hemofili\u00ed"},"content":{"rendered":"

\"\"<\/p>\n

Hemofilie je vz\u00e1cn\u00e9 d\u011bdi\u010dn\u00e9 onemocn\u011bn\u00ed, kter\u00e9 se projevuje poruchou sr\u00e1\u017elivosti krve a dvakr\u00e1t v\u00edce se t\u00fdk\u00e1 mu\u017e\u016f ne\u017e \u017een. Vloni bylo s touto chorobou v p\u00e9\u010di 1379\u00a0klient\u016f V\u0161eobecn\u00e9 zdravotn\u00ed poji\u0161\u0165ovny. L\u00e9\u010dba hemofilie pat\u0159\u00ed k\u00a0t\u011bm nejn\u00e1kladn\u011bj\u0161\u00edm a VZP za ni vloni vydala p\u0159es jednu miliardu korun.\u00a0Tiskovou zpr\u00e1vu vyd\u00e1v\u00e1me p\u0159i p\u0159\u00edle\u017eitosti Sv\u011btov\u00e9ho dne hemofilie (17. 4.).<\/b><\/h6>\n

Hemofilie je vz\u00e1cn\u00e9, vrozen\u00e9 a dosud nevyl\u00e9\u010diteln\u00e9 onemocn\u011bn\u00ed, kter\u00e9 postihuje p\u0159ev\u00e1\u017en\u011b mu\u017ee. Ve v\u011bt\u0161in\u011b p\u0159\u00edpad\u016f je diagnostikov\u00e1no ji\u017e v prvn\u00edm roce \u017eivota, kdy se u d\u00edt\u011bte p\u0159i za\u010d\u00e1tc\u00edch lezen\u00ed a ch\u016fze objevuje nadm\u011brn\u00e1 tvorba mod\u0159in. M\u00edrn\u011bj\u0161\u00ed formy hemofilie v\u0161ak mohou b\u00fdt odhaleny a\u017e v pozd\u011bj\u0161\u00edm v\u011bku.<\/p>\n

\u201ePo\u010det klient\u016f se v\u00a0podstat\u011b za posledn\u00edch 10 let v\u00fdrazn\u011b nezm\u011bnil, rostou ale n\u00e1klady na l\u00e9\u010dbu tohoto vz\u00e1cn\u00e9ho d\u011bdi\u010dn\u00e9ho onemocn\u011bn\u00ed. Souvis\u00ed to p\u0159edev\u0161\u00edm s n\u00e1stupem modern\u00edch l\u00e9\u010div\u00fdch p\u0159\u00edpravk\u016f, kter\u00e9 jsou velmi \u00fa\u010dinn\u00e9, ale z\u00e1rove\u0148 finan\u010dn\u011b n\u00e1ro\u010dn\u00e9. D\u00edky nim se v\u0161ak m\u016f\u017ee zlep\u0161it kvalita \u017eivota pacient\u016f a sn\u00ed\u017eit po\u010det z\u00e1va\u017en\u00fdch komplikac\u00ed,\u201c<\/i>\u00a0<\/b><\/a>\u0159\u00edk\u00e1\u00a0Miroslav Jank\u016fj, pov\u011b\u0159en\u00fd n\u00e1m\u011bstek \u0159editele VZP \u010cR pro zdravotn\u00ed p\u00e9\u010di, a dopl\u0148uje:\u00a0\u201eU hemofilik\u016f chyb\u00ed v krvi sr\u00e1\u017eec\u00ed faktor, proto je z\u00e1kladem l\u00e9\u010dby jeho pravideln\u00e9 dopl\u0148ov\u00e1n\u00ed p\u0159\u00edmo do krevn\u00edho ob\u011bhu. Terapie je v\u017edy nastavov\u00e1na individu\u00e1ln\u011b, a tomu odpov\u00eddaj\u00ed i rozd\u00edln\u00e9 finan\u010dn\u00ed n\u00e1klady. Odv\u00edjej\u00ed se od mno\u017estv\u00ed specializovan\u00e9ho a mimo\u0159\u00e1dn\u011b n\u00e1kladn\u00e9ho l\u00e9\u010div\u00e9ho p\u0159\u00edpravku pot\u0159ebn\u00e9ho pro konkr\u00e9tn\u00edho pacienta. U n\u011bkter\u00fdch se mohou pohybovat v \u0159\u00e1du des\u00edtek tis\u00edc korun ro\u010dn\u011b, u jin\u00fdch dosahuj\u00ed a\u017e des\u00edtek milion\u016f.\u201c<\/i><\/p>\n

<\/a>\u201eKdy\u017e se pod\u00edv\u00e1te kolem sebe, uvid\u00edte dva r\u016fzn\u00e9 p\u0159\u00edb\u011bhy. Jsou tu lid\u00e9, kte\u0159\u00ed si nesou n\u00e1sledky z doby, kdy l\u00e9\u010dba nebyla takov\u00e1 jako dnes, tedy bolav\u00e9 klouby, omezen\u00ed, ka\u017edodenn\u00ed nepohodl\u00ed. A pak je tu mlad\u0161\u00ed generace, kter\u00e1 m\u00e1 \u0161anci \u017e\u00edt skoro norm\u00e1ln\u00ed \u017eivot. Ov\u0161em jen v p\u0159\u00edpad\u011b, \u017ee l\u00e9\u010dbu opravdu dodr\u017euje. P\u0159itom je dobr\u00e9 si uv\u011bdomit, \u017ee ve sv\u011bt\u011b m\u00e1 tuhle mo\u017enost jen asi \u010dtvrtina pacient\u016f, tak\u017ee to, co je pro n\u00e1s dostupn\u00e9, rozhodn\u011b nen\u00ed samoz\u0159ejmost,\u201c<\/i>\u00a0uv\u00e1d\u00ed\u00a0Kate\u0159ina Altmanov\u00e1, p\u0159edsedkyn\u011b sdru\u017een\u00ed\u00a0Hemojunior.<\/a><\/strong><\/p>\n

\u201eHemofilie nen\u00ed nemoc, kterou si \u010dlov\u011bk m\u016f\u017ee dovolit br\u00e1t na lehkou v\u00e1hu. I kdy\u017e dnes m\u00e1me v \u010cesku l\u00e9\u010dbu na \u0161pi\u010dkov\u00e9 \u00farovni, bez pravidelnosti a zodpov\u011bdn\u00e9ho p\u0159\u00edstupu to prost\u011b nefunguje. Nen\u00ed to n\u011bco, na co si vezmete l\u00e9k jen ob\u010das. Je to ka\u017edodenn\u00ed z\u00e1vazek s\u00e1m k sob\u011b, aby v\u011bci z\u016fstaly pod kontrolou,\u201c<\/i>\u00a0zd\u016fraz\u0148uje\u00a0Martina Boh\u016fn, p\u0159edseda \u010cesk\u00e9ho svazu\u00a0hemofilik\u016f<\/a>,<\/strong> a dopl\u0148uje:\u00a0\u201eDobrou zpr\u00e1vou je, \u017ee zdravotn\u00ed syst\u00e9m dok\u00e1\u017ee poskytovat p\u00e9\u010di na vysok\u00e9 \u00farovni. Spolupr\u00e1ce s odborn\u00edky a\u00a0poji\u0161\u0165ovnami umo\u017e\u0148uje posunout p\u00e9\u010di za hranici pouh\u00e9ho potla\u010den\u00ed krv\u00e1cen\u00ed \u2013 c\u00edlem je, aby lid\u00e9 s\u00a0hemofili\u00ed mohli \u017e\u00edt \u017eivot co nejv\u00edce podobn\u00fd \u017eivotu zdrav\u00fdch lid\u00ed.\u201c<\/i><\/p>\n

Nej\u010dast\u011bj\u0161\u00ed typ<\/strong><\/a>\u00a0je hemofilie \u201eA\u201c, p\u0159i n\u00ed\u017e chyb\u00ed b\u00edlkovina naz\u00fdvan\u00e1 faktor VIII. Zde se u pacient\u016f objevuj\u00ed v\u00fdrony v\u011bt\u0161inou do kloub\u016f. A potom m\u016f\u017ee b\u00fdt typ hemofilie \u201eB\u201c, kde nen\u00ed faktor IX a u tohoto typu jsou v\u00fdrony hlavn\u011b do sval\u016f. Prvn\u00ed p\u0159\u00edznaky se mohou projevit p\u0159i porodu, po o\u010dkov\u00e1n\u00ed a p\u0159i pro\u0159ez\u00e1v\u00e1n\u00ed zub\u016f. U\u00a0n\u011bkter\u00fdch chlapc\u016f se mezi jejich p\u0159edky hemofile v\u016fbec nevyskytuje. Jedn\u00e1 se o tzv. skrytou, utajenou hemofilii, proto\u017ee se v rodin\u011b d\u011bdila pouze p\u0159es \u017eeny \u2013 p\u0159ena\u0161e\u010dky. Vzhledem k tomu, \u017ee p\u0159ena\u0161e\u010dky v\u011bt\u0161inou nekrv\u00e1cej\u00ed, hemofilie se po mnoho generac\u00ed neprojev\u00ed. V druh\u00e9m p\u0159\u00edpad\u011b, kdy se rovn\u011b\u017e nemoc v rodin\u011b nevyskytla, se m\u016f\u017ee jednat o genovou poruchu.<\/p>\n

\"\"<\/p>\n

P\u0159\u00edznaky hemofilie souvisej\u00ed s poruchou sr\u00e1\u017elivosti krve a li\u0161\u00ed se podle z\u00e1va\u017enosti onemocn\u011bn\u00ed. Mezi nej\u010dast\u011bj\u0161\u00ed pat\u0159\u00ed:<\/p>\n

\u27a4\u00a0Nadm\u011brn\u00e1 a dlouhotrvaj\u00edc\u00ed krv\u00e1cen\u00ed po drobn\u00fdch \u00farazech, z\u00e1kroc\u00edch nebo operac\u00edch;
\n\u27a4\u00a0Snadn\u00e1 tvorba mod\u0159in bez zjevn\u00e9 p\u0159\u00ed\u010diny, zejm\u00e9na u mal\u00fdch d\u011bt\u00ed;
\n\u27a4\u00a0Krv\u00e1cen\u00ed do kloub\u016f a sval\u016f, kter\u00e9 se projevuje bolest\u00ed, otokem a omezen\u00edm pohybu;
\n\u27a4\u00a0\u010cast\u00e9 krv\u00e1cen\u00ed z nosu nebo d\u00e1sn\u00ed;
\n\u27a4\u00a0Krev v mo\u010di nebo stolici v z\u00e1va\u017en\u011bj\u0161\u00edch p\u0159\u00edpadech.<\/p>\n

(vzp)<\/strong><\/p>\n

\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Hemofilie je <\/p>\n","protected":false},"author":2,"featured_media":372915,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"gallery","meta":{"footnotes":""},"categories":[88],"tags":[],"jetpack_featured_media_url":"https:\/\/zakrasnejsivimperk.cz\/wp-content\/uploads\/2026\/04\/15\/ram-vzp.jpg","_links":{"self":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/372913"}],"collection":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=372913"}],"version-history":[{"count":1,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/372913\/revisions"}],"predecessor-version":[{"id":372916,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/372913\/revisions\/372916"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/media\/372915"}],"wp:attachment":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=372913"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=372913"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=372913"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}