{"id":330087,"date":"2024-11-29T09:07:18","date_gmt":"2024-11-29T08:07:18","guid":{"rendered":"https:\/\/zakrasnejsivimperk.cz\/?p=330087"},"modified":"2024-11-29T09:07:18","modified_gmt":"2024-11-29T08:07:18","slug":"z-prvni-ruky-lecba-nejdrazsiho-pacienta-stala-vzp-cr-temer-62-milionu-korun-divence-nebyl-jeste-ani-rok","status":"publish","type":"post","link":"https:\/\/zakrasnejsivimperk.cz\/?p=330087","title":{"rendered":"Z PRVN\u00cd RUKY: L\u00e9\u010dba nejdra\u017e\u0161\u00edho pacienta st\u00e1la VZP \u010cR t\u00e9m\u011b\u0159 62 milion\u016f korun, d\u00edvence nebyl je\u0161t\u011b ani rok"},"content":{"rendered":"
\"\"Celkov\u00e9 n\u00e1klady na l\u00e9\u010dbu dvaceti nejdra\u017e\u0161\u00edch pacient\u016f, klient\u016f VZP, dos\u00e1hly v\u00a0lo\u0148sk\u00e9m roce \u010d\u00e1stky t\u00e9m\u011b\u0159 t\u0159i \u010dtvrt\u011b miliardy korun (728\u00a0mil. K\u010d). To je dvakr\u00e1t v\u00edc ne\u017e p\u0159ed 10 lety (302 mil.) K\u010d. Nejmlad\u0161\u00ed pacient je\u0161t\u011b neoslavil prvn\u00ed narozeniny, jeho l\u00e9\u010dba se t\u00fdkala diagn\u00f3zy spin\u00e1ln\u00ed svalov\u00e1 atrofie. Nejstar\u0161\u00edm z\u00a0prvn\u00ed dvac\u00edtky byl mu\u017e ve v\u011bku 56 let trp\u00edc\u00ed metabolick\u00fdm onemocn\u011bn\u00edm porfyrie. Informace o nejdra\u017e\u0161\u00edch pacientech zve\u0159ej\u0148uje VZP s c\u00edlem informovat ve\u0159ejnost o n\u00e1kladnosti zdravotn\u00ed p\u00e9\u010de.<\/b><\/h6>\n

Nejn\u00e1kladn\u011bj\u0161\u00ed l\u00e9\u010dba se t\u00fdk\u00e1 zejm\u00e9na vz\u00e1cn\u00fdch a d\u011bdi\u010dn\u00fdch onemocn\u011bn\u00ed a vy\u017eaduje specializovan\u00e9 a velmi n\u00e1kladn\u00e9 l\u00e9\u010div\u00e9 p\u0159\u00edpravky. Ty v\u00a0t\u011bchto p\u0159\u00edpadech tvo\u0159\u00ed a\u017e 96 % v\u0161ech n\u00e1klad\u016f na l\u00e9\u010dbu. Nejvy\u0161\u0161\u00ed v\u00fddaje dosahuj\u00edc\u00ed t\u00e9m\u011b\u0159 63 milion\u016f korun si vloni vy\u017e\u00e1dala p\u00e9\u010de o ro\u010dn\u00ed hol\u010di\u010dku s diagn\u00f3zou spin\u00e1ln\u00ed svalov\u00e1 atrofie. Jedn\u00e1 se o vz\u00e1cn\u00e9 genetick\u00e9 onemocn\u011bn\u00ed zp\u016fsobuj\u00edc\u00ed ztr\u00e1tu svalov\u00e9 hmoty, n\u00e1sledn\u011b tak\u00e9 z\u00e1va\u017en\u00e9 pohybov\u00e9 obt\u00ed\u017ee a d\u00fdchac\u00ed probl\u00e9my. D\u00edky modern\u00ed terapii v\u0161ak existuje \u0161ance na v\u00fdrazn\u00e9 zlep\u0161en\u00ed kvality \u017eivota t\u011bchto pacient\u016f.<\/p>\n

\u201eVe skupin\u011b dvaceti nejn\u00e1kladn\u011bj\u0161\u00edch pacient\u016f bylo vloni hned dev\u011bt d\u011bt\u00ed l\u00e9\u010deno se spin\u00e1ln\u00ed svalovou atrofi\u00ed. Ve v\u0161ech p\u0159\u00edpadech jim byl pod\u00e1n revolu\u010dn\u00ed l\u00e9k Zolgensma. D\u011btem bylo od n\u011bkolika m\u011bs\u00edc\u016f do dvou let,<\/i>\u201c \u0159\u00edk\u00e1 Jan Bodn\u00e1r, n\u00e1m\u011bstek \u0159editele VZP \u010cR pro zdravotn\u00ed p\u00e9\u010di. Zolgensma, sv\u00e9ho \u010dasu pova\u017eov\u00e1na za nejdra\u017e\u0161\u00ed l\u00e9k sv\u011bta, dok\u00e1\u017ee geneticky upravit p\u0159\u00ed\u010dinu onemocn\u011bn\u00ed a v\u00fdrazn\u011b tak zlep\u0161it progn\u00f3zu u t\u011bchto pacient\u016f.<\/p>\n

Mezi dvac\u00edtkou nejdra\u017e\u0161\u00edch diagn\u00f3z se vedle spin\u00e1ln\u00ed svalov\u00e9 atrofie nach\u00e1zeli tak\u00e9 t\u0159i pacienti se svalovou dystrofii, dal\u0161\u00ed \u010dty\u0159i trp\u011bli r\u016fzn\u00fdmi metabolick\u00fdmi poruchami. Dva pacienti byli l\u00e9\u010deni s diagn\u00f3zou akutn\u00ed lymfoblastick\u00e9 leukemie. D\u00e1le se mezi nejdra\u017e\u0161\u00edmi diagn\u00f3zami objevila hemofilie i vz\u00e1cn\u00e1 porucha nervov\u00e9ho syst\u00e9mu neuron\u00e1ln\u00ed ceroidn\u00ed lipofuscin\u00f3za.<\/p>\n

(tz-vzp)<\/strong><\/p>\n

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 <\/p>\n

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Opravy a \u00fadr\u017eba silnic I. t\u0159\u00eddy st\u00e1ly 62,5 mld. K\u010d. T\u0159etina t\u011bchto silnic z\u016fstala v nevyhovuj\u00edc\u00edm a havarijn\u00edm stavu<\/a><\/h4>\n

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\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Celkov\u00e9 n\u00e1klady <\/p>\n","protected":false},"author":2,"featured_media":330088,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"gallery","meta":{"footnotes":""},"categories":[70],"tags":[],"jetpack_featured_media_url":"https:\/\/zakrasnejsivimperk.cz\/wp-content\/uploads\/2024\/11\/29\/z-ruky-vzp.jpg","_links":{"self":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/330087"}],"collection":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=330087"}],"version-history":[{"count":1,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/330087\/revisions"}],"predecessor-version":[{"id":330089,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/330087\/revisions\/330089"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/media\/330088"}],"wp:attachment":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=330087"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=330087"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=330087"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}