{"id":278320,"date":"2023-05-05T20:16:42","date_gmt":"2023-05-05T19:16:42","guid":{"rendered":"https:\/\/zakrasnejsivimperk.cz\/?p=278320"},"modified":"2023-05-05T20:16:42","modified_gmt":"2023-05-05T19:16:42","slug":"dtest-sdileni-zdravotnich-dat-citlive-tema-pro-spotrebitele","status":"publish","type":"post","link":"https:\/\/zakrasnejsivimperk.cz\/?p=278320","title":{"rendered":"dTest: Sd\u00edlen\u00ed zdravotn\u00edch dat \u2013 citliv\u00e9 t\u00e9ma pro spot\u0159ebitele"},"content":{"rendered":"
Evropsk\u00e9 instituce v sou\u010dasnosti projedn\u00e1vaj\u00ed na\u0159\u00edzen\u00ed o Evropsk\u00e9m prostoru pro zdravotn\u00ed data. dTest a jeho partne\u0159i ze 7 zem\u00ed, \u010dlenov\u00e9 Evropsk\u00e9 organizace spot\u0159ebitel\u016f (BEUC), provedli v\u00fdzkum ve sv\u00fdch zem\u00edch, kter\u00fd formou dotazn\u00edku zji\u0161\u0165oval ochotu spot\u0159ebitel\u016f sd\u00edlet sv\u00e9 citliv\u00e9 zdravotn\u00ed \u00fadaje s r\u016fzn\u00fdmi p\u0159\u00edjemci. Z v\u00fdzkumu je patrn\u00e9, \u017ee je nutn\u00e9 p\u0159ijmout \u0159adu opat\u0159en\u00ed, kter\u00e1 spot\u0159ebitel\u016fm zaru\u010d\u00ed ochranu jejich osobn\u00edch \u00fadaj\u016f.<\/h6>\n

\"\"V\u00fdzkum proveden\u00fd spot\u0159ebitelsk\u00fdmi organizacemi paraleln\u011b v osmi evropsk\u00fdch zem\u00edch, v\u010detn\u011b \u010cesk\u00e9 republiky, uk\u00e1zal, \u017ee spot\u0159ebitel\u00e9 jsou p\u0159i sd\u00edlen\u00ed sv\u00fdch zdravotn\u00edch \u00fadaj\u016f opatrn\u011bj\u0161\u00ed a selektivn\u011bj\u0161\u00ed, ne\u017e p\u0159edpokl\u00e1d\u00e1 chystan\u00e9 evropsk\u00e9 na\u0159\u00edzen\u00ed o Evropsk\u00e9m prostoru pro zdravotn\u00ed data (European Health Data Space).<\/p>\n

Hlavn\u00ed zji\u0161t\u011bn\u00ed v\u00fdzkumu:<\/h6>\n

\u2022 P\u0159ev\u00e1\u017en\u00e1 v\u011bt\u0161ina dot\u00e1zan\u00fdch ji\u017e pou\u017e\u00edv\u00e1 ur\u010dit\u00e9 zdravotnick\u00e9 platformy, kde sd\u00edl\u00ed ur\u010dit\u00e1 zdravotn\u00ed data, od nejvy\u0161\u0161\u00ed m\u00edry u\u017e\u00edv\u00e1n\u00ed ve Francii (96 %) a\u017e po nejni\u017e\u0161\u00ed v N\u011bmecku (70 %).<\/p>\n

\u2022 Dot\u00e1zan\u00ed rozli\u0161uj\u00ed mezi \u00fadaji, kter\u00e9 jsou ochotni sd\u00edlet: 61 % respondent\u016f je ochotno sd\u00edlet sv\u016fj zdravotn\u00ed stav (nap\u0159. alergie) pro \u00fa\u010dely poskytov\u00e1n\u00ed zdravotn\u00ed p\u00e9\u010de, ale velk\u00e1 v\u011bt\u0161ina respondent\u016f nechce sd\u00edlet \u00fadaje t\u00fdkaj\u00edc\u00ed se jejich zdra-votn\u00edch n\u00e1vyk\u016f (67\u201370 % v z\u00e1vislosti na \u00fa\u010delu), genetick\u00e9 \u00fadaje (77\u201380 %) nebo \u00fadaje o sexu\u00e1ln\u00edm a reproduk\u010dn\u00edm zdrav\u00ed (85\u201387 %).<\/p>\n

\u2022 Ochota respondent\u016f sd\u00edlet sv\u00e9 zdravotn\u00ed \u00fadaje s jin\u00fdm subjektem siln\u011b odr\u00e1\u017e\u00ed \u00farove\u0148 d\u016fv\u011bry, kterou v n\u011bj vkl\u00e1daj\u00ed: 88 % respondent\u016f je ochotno sd\u00edlet sv\u00e9 \u00fadaje se sv\u00fdmi praktick\u00fdmi l\u00e9ka\u0159i, ale pouze 8 % je ochotno sd\u00edlet sv\u00e9 \u00fadaje s poji\u0161\u0165ovnami nebo poskytovateli wellness slu\u017eeb. Nejmen\u0161\u00ed po\u010det respondent\u016f, 5 %, je pak ochoten sd\u00edlet sv\u00e9 zdravotn\u00ed \u00fadaje s digit\u00e1ln\u00edmi technologick\u00fdmi spo-le\u010dnostmi.<\/p>\n

\u2022 Drtiv\u00e1 v\u011bt\u0161ina lid\u00ed (81 %) chce m\u00edt mo\u017enost rozhodovat o tom, jak\u00e9 osobn\u00ed \u00fadaje, komu a k jak\u00fdm \u00fa\u010del\u016fm budou poskytnuty. P\u0159esto zat\u00edm pouze 19 % responden-t\u016f ji\u017e p\u0159istoupilo k omezen\u00ed p\u0159\u00edstupu n\u011bkter\u00fdm subjekt\u016fm ke sv\u00fdm zdravotn\u00edm \u00fadaj\u016fm, co\u017e nazna\u010duje, \u017ee sou\u010dasn\u00e9 nastaven\u00ed ochrany osobn\u00edch \u00fadaj\u016f ve zdra-votnick\u00fdch platform\u00e1ch bu\u010f neumo\u017e\u0148uje lidem uplat\u0148ovat sv\u00e9 preference, nebo si lid\u00e9 nejsou v\u011bdomi toho, \u017ee mohou o zpracov\u00e1n\u00ed sv\u00fdch osobn\u00edch \u00fadaj\u016f rozho-dovat, p\u0159\u00edpadn\u011b nev\u00ed, jak\u00fdm zp\u016fsobem to mohou ud\u011blat.<\/p>\n

\u2022 Pouze polovina respondent\u016f (51 %) je ochotna sd\u00edlet sv\u00e9 zdravotn\u00ed \u00fadaje se zdravotn\u00edky v jin\u00fdch \u010dlensk\u00fdch st\u00e1tech EU za \u00fa\u010delem zaji\u0161t\u011bn\u00ed dobr\u00e9 l\u00e9\u010dby v za-hrani\u010d\u00ed.<\/p>\n

S ohledem na v\u00fdsledky v\u00fdzkumu doporu\u010duj\u00ed evropsk\u00e9 spot\u0159ebitelsk\u00e9 organizace prov\u00e9st v chystan\u00e9m na\u0159\u00edzen\u00ed o Evropsk\u00e9m prostoru pro zdravotn\u00ed data n\u011bkolik z\u00e1sadn\u00edch opat\u0159en\u00ed:<\/h6>\n

a) Vytvo\u0159it p\u0159ihla\u0161ovac\u00ed (opt-in) mechanismus pro pacienty, aby mohli sd\u00edlet sv\u00e9 osobn\u00ed \u00fadaje pro \u00fa\u010dely zdravotn\u00ed p\u00e9\u010de pro sebe.<\/p>\n

b) Vytvo\u0159it odhla\u0161ovac\u00ed (opt-out) mechanismus pro sd\u00edlen\u00ed vlastn\u00edch osobn\u00edch \u00fadaj\u016f pro \u00fa\u010dely v\u011bdeck\u00e9ho v\u00fdzkumu nebo ve\u0159ejn\u00e9ho zdrav\u00ed.<\/p>\n

c) Vylou\u010den\u00ed genetick\u00fdch \u00fadaj\u016f a \u00fadaj\u016f vytvo\u0159en\u00fdch subjekty \u00fadaj\u016f v aplikac\u00edch pro zdrav\u00fd \u017eivotn\u00ed styl a v digit\u00e1ln\u00edch zdravotnick\u00fdch aplikac\u00edch slou\u017e\u00edc\u00edch v\u011bdeck\u00fdm \u00fa\u010del\u016fm nebo \u00fa\u010del\u016fm ve\u0159ejn\u00e9ho zdrav\u00ed (sekund\u00e1rn\u00ed vyu\u017eit\u00ed \u00fadaj\u016f) z oblasti p\u016fsobnosti na\u0159\u00edzen\u00ed.<\/p>\n

d) P\u0159\u00edm\u00fd z\u00e1kaz n\u011bkter\u00fdch \u00fa\u010del\u016f zpracov\u00e1n\u00ed osobn\u00edch \u00fadaj\u016f, ke kter\u00fdm respondenti ve v\u00fdzkumu projevili nejv\u011bt\u0161\u00ed ned\u016fv\u011bru.<\/p>\n

e) Zlep\u0161ovat spot\u0159ebitelskou znalost a digit\u00e1ln\u00ed gramotnost.<\/p>\n

Celou zpr\u00e1vu evropsk\u00fdch spot\u0159ebitelsk\u00fdch organizac\u00ed o proveden\u00e9m v\u00fdzkumu a o doporu\u010den\u00edch pro dal\u0161\u00ed p\u0159\u00edpravu Evropsk\u00e9ho prostoru pro zdravotn\u00ed data je mo\u017en\u00e9 nal\u00e9zt zde<\/strong><\/a>.<\/p>\n

Spot\u0159ebitel\u00e9 s dal\u0161\u00edmi ot\u00e1zkami v oblasti ochrany osobn\u00edch \u00fadaj\u016f se mohou obr\u00e1tit na bezplatnou spot\u0159ebitelskou poradnu dTestu, a to elektronicky na www.dtest.cz\/spotrebitelska-poradna<\/strong><\/a> nebo telefonicky na \u010d\u00edslo 299 149 009. O ochran\u011b osobn\u00edch \u00fadaj\u016f se mohou do\u010d\u00edst v\u00edce i v bro\u017eu\u0159e dTestu Bezpe\u010dn\u011b na internetu.<\/strong><\/a><\/p>\n

dTest<\/strong><\/p>\n

\n

 <\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Evropsk\u00e9 instituce <\/p>\n","protected":false},"author":2,"featured_media":278321,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"gallery","meta":{"footnotes":""},"categories":[87],"tags":[],"jetpack_featured_media_url":"https:\/\/zakrasnejsivimperk.cz\/wp-content\/uploads\/2023\/05\/05\/dtest.jpg","_links":{"self":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/278320"}],"collection":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=278320"}],"version-history":[{"count":1,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/278320\/revisions"}],"predecessor-version":[{"id":278322,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/278320\/revisions\/278322"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/media\/278321"}],"wp:attachment":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=278320"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=278320"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=278320"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}