{"id":235659,"date":"2021-09-18T12:50:29","date_gmt":"2021-09-18T11:50:29","guid":{"rendered":"http:\/\/zakrasnejsivimperk.cz\/?p=235659"},"modified":"2021-09-24T13:56:27","modified_gmt":"2021-09-24T12:56:27","slug":"infoservis-podzimni-srdickove-dny-zari-2021","status":"publish","type":"post","link":"https:\/\/zakrasnejsivimperk.cz\/?p=235659","title":{"rendered":"INFOSERVIS: Podzimn\u00ed Srd\u00ed\u010dkov\u00e9 dny, z\u00e1\u0159\u00ed 2021"},"content":{"rendered":"

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V t\u00fddnu od 20. do 24. z\u00e1\u0159\u00ed po\u0159\u00e1d\u00e1 \u017divot d\u011btem o.p.s. jako ka\u017ed\u00fdm rokem tradi\u010dn\u00ed Srd\u00ed\u010dkov\u00e9 dny. Studenti st\u0159edn\u00edch \u0161kol a u\u010dili\u0161\u0165 vyjdou do ulic sv\u00fdch m\u011bst po cel\u00e9 republice, aby kolemjdouc\u00edm nab\u00eddli sb\u00edrkov\u00e9 p\u0159edm\u011bty na pomoc rodin\u00e1m s\u00a0v\u00e1\u017en\u011b nemocn\u00fdmi d\u011btmi.<\/h6>\n

\"\"Tentokr\u00e1t si m\u016f\u017eete zakoupit magnetky se zv\u00ed\u0159\u00e1tky za 30 K\u010d, barevn\u00e9 magnetick\u00e9 kol\u00ed\u010dky za stejnou cenu nebo barevn\u00e9 magnetick\u00e9 z\u00e1lo\u017eky ve tvaru srd\u00ed\u010dka za 35 K\u010d. V\u00fdt\u011b\u017eek sb\u00edrky je ur\u010den u\u017e tradi\u010dn\u011b rodin\u00e1m s v\u00e1\u017en\u011b nemocn\u00fdmi d\u011btmi, kter\u00e9 zvl\u00e1\u0161\u0165 v\u00a0sou\u010dasn\u00e9 dob\u011b jsou odk\u00e1z\u00e1ny na pomoc ostatn\u00edch je\u0161t\u011b v\u00edce ne\u017e kdy jindy.<\/p>\n

Tv\u00e1\u0159\u00ed podzimn\u00edch Srd\u00ed\u010dkov\u00fdch dn\u016f je mal\u00fd M\u00ed\u0161a, kter\u00fd trp\u00ed spin\u00e1ln\u00ed svalovou atrofi\u00ed. Jedn\u00e1 se o v\u00e1\u017en\u00e9 nevyl\u00e9\u010diteln\u00e9 genetick\u00e9 onemocn\u011bn\u00ed, p\u0159i kter\u00e9m mal\u00e9mu M\u00ed\u0161ovi postupn\u011b ochabuj\u00ed svaly, za\u010dne m\u00edt probl\u00e9my s\u00a0pohybem, polyk\u00e1n\u00edm, nakonec i s\u00a0d\u00fdch\u00e1n\u00edm, m\u016f\u017ee skon\u010dit na um\u011bl\u00e9 plicn\u00ed ventilaci, a nakonec i um\u0159\u00edt. To se dozv\u011bd\u011bli rodi\u010de, kdy\u017e si vyslechli synovu diagn\u00f3zu. Byl to pro n\u011b velk\u00fd \u0161ok. Nad\u011bje jim svitla v\u00a0podob\u011b velmi drah\u00e9ho l\u00e9ku Spinrazy, kter\u00fd se t\u0159ikr\u00e1t ro\u010dn\u011b aplikuje v\u00a0oblasti bedern\u00ed p\u00e1te\u0159e do p\u00e1te\u0159n\u00edho kan\u00e1lku. Tento l\u00e9k sice nedok\u00e1\u017ee spin\u00e1ln\u00ed svalovou atrofii vyl\u00e9\u010dit, ale um\u00ed ochabov\u00e1n\u00ed sval\u016f pozastavit. K\u00a0tomu je zapot\u0159eb\u00ed pravideln\u011b n\u011bkolikr\u00e1t ro\u010dn\u011b rehabilitovat, jen\u017ee tyto speci\u00e1ln\u00ed rehabilitace jsou drah\u00e9 a zdravotn\u00ed poji\u0161\u0165ovny je nehrad\u00ed. M\u00ed\u0161ovi m\u016f\u017eeme pomoci my ostatn\u00ed a d\u00e1t mu tak nad\u011bji na jeho prvn\u00ed kr\u016f\u010dek.<\/p>\n

Pomozte M\u00ed\u0161ovi a dal\u0161\u00edm v\u00e1\u017en\u011b nemocn\u00fdm d\u011btem na jejich t\u011b\u017ek\u00e9 cest\u011b \u017eivotem a kupte si od dobrovoln\u00edk\u016f n\u011bkter\u00fd z\u00a0na\u0161ich sb\u00edrkov\u00fdch p\u0159edm\u011bt\u016f. Sb\u00edrka prob\u00edh\u00e1 tak\u00e9 online na webov\u00e9 str\u00e1nce\u00a0www.srdickovedny.cz<\/a><\/strong>, kde je mo\u017en\u00e9 si zakoupit virtu\u00e1ln\u011b srd\u00ed\u010dko nebo obr\u00e1zek se zv\u00ed\u0159\u00e1tky za 30 K\u010d. Dal\u0161\u00ed mo\u017enost\u00ed je tak\u00e9 obr\u00e1zek \u201eD\u00e1v\u00e1m srdce d\u011btem\u201c za 100 K\u010d, 300 K\u010d nebo 500 K\u010d. Obr\u00e1zky k\u00a0V\u00e1m po zaplacen\u00ed doraz\u00ed e-mailem.<\/p>\n

P\u0159isp\u011bt nemocn\u00fdm d\u011btem m\u016f\u017eete tak\u00e9 zakoupen\u00edm sb\u00edrkov\u00fdch p\u0159edm\u011bt\u016f v\u00a0e-shopu na\u00a0www.zivotdetem.cz<\/a><\/strong>\u00a0nebo zasl\u00e1n\u00edm d\u00e1rcovskou SMS ve tvaru DMS ZIVOTDETEM60 na \u010d\u00edslo 87777, nebo zasl\u00e1n\u00ed p\u0159\u00edsp\u011bvku na sb\u00edrkov\u00fd \u00fa\u010det 83297339\/0800 s\u00a0variabiln\u00edm symbolem 1234.<\/p>\n

\u017divot d\u011btem o.p.s. d\u011bkuje v\u0161em laskav\u00fdm lidem za pomoc nemocn\u00fdm d\u011btem, ke kter\u00fdm osud nebyl milosrdn\u00fd. Bez na\u0161\u00ed podpory se tyto d\u011bti neobejdou. D\u011bkujeme.<\/p>\n

\u017dIVOT D\u011aTEM\u00a0o.p.s.<\/strong><\/p>\n

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