{"id":203412,"date":"2020-09-19T12:39:29","date_gmt":"2020-09-19T11:39:29","guid":{"rendered":"http:\/\/zakrasnejsivimperk.cz\/?p=203412"},"modified":"2020-09-19T12:45:10","modified_gmt":"2020-09-19T11:45:10","slug":"infoservis-podzimni-srdickove-dny","status":"publish","type":"post","link":"https:\/\/zakrasnejsivimperk.cz\/?p=203412","title":{"rendered":"INFOSERVIS: Podzimn\u00ed Srd\u00ed\u010dkov\u00e9 dny"},"content":{"rendered":"

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V pond\u011bl\u00ed 21. z\u00e1\u0159\u00ed zahajuje obecn\u011b prosp\u011b\u0161n\u00e1 spole\u010dnost \u017divot d\u011btem ofici\u00e1ln\u00ed tradi\u010dn\u00ed podzimn\u00ed Srd\u00ed\u010dkov\u00e9 dny, kter\u00e9 jsou rovn\u011b\u017e poznamenan\u00e9 koronavirem, proto v n\u011bkter\u00fdch m\u011bstech m\u016f\u017eete potkat dobrovoln\u00edky i v jin\u00e9m term\u00ednu.<\/h6>\n

\"\"V\u011b\u0159\u00edme, \u017ee tito dobrovoln\u00edci, kte\u0159\u00ed V\u00e1m nab\u00eddnout n\u011bkter\u00fd z na\u0161ich sb\u00edrkov\u00fdch p\u0159edm\u011bt\u016f, v ulic\u00edch opravdu budou. N\u011bkter\u00e9 spolupracuj\u00edc\u00ed \u0161koly se ob\u00e1vaj\u00ed pustit v sou\u010dasnosti studenty do ulic a bu\u010f realizuj\u00ed sb\u00edrku ve \u0161kole nebo ji \u00fapln\u011b ru\u0161\u00ed, co\u017e samoz\u0159ejm\u011b ch\u00e1peme, ale vzhledem k situaci v rodin\u00e1ch s v\u00e1\u017en\u011b nemocn\u00fdmi d\u011btmi, kter\u00e1 je skute\u010dn\u011b kritick\u00e1, n\u00e1s to velmi mrz\u00ed.<\/p>\n

Proto v\u0161echny moc pros\u00edme, pokud nebudete m\u00edt mo\u017enost p\u0159isp\u011bt nemocn\u00fdm d\u011btem p\u0159\u00edmo na ulici, pod\u00edvejte se na na\u0161e webov\u00e9 str\u00e1nky\u00a0www.zivotdetem.cz<\/strong><\/a>\u00a0a kupte si n\u011bkter\u00fd ze sb\u00edrkov\u00fdch p\u0159edm\u011bt\u016f v na\u0161em e-shopu. Moc V\u00e1m za podporu d\u011bkujeme.<\/p>\n

Tv\u00e1\u0159\u00ed podzimn\u00edch Srd\u00ed\u010dkov\u00fdch dn\u016f je mal\u00e1 Viktorka, kter\u00e1 trp\u00ed spin\u00e1ln\u00ed svalovou atrofi\u00ed. Je to nevyl\u00e9\u010diteln\u00e9 genetick\u00e9 onemocn\u011bn\u00ed, p\u0159i kter\u00e9m zcela ochabuj\u00ed svaly. Viktorka m\u00e1 vlastn\u011b \u0161t\u011bst\u00ed v ne\u0161t\u011bst\u00ed, proto\u017ee se na trhu objevil p\u0159ed p\u00e1r lety drah\u00fd l\u00e9k Spinraza, kter\u00fd dok\u00e1\u017ee ochabov\u00e1n\u00ed sval\u016f pozastavit. Po \u010dty\u0159ech d\u00e1vk\u00e1ch ji\u017e hol\u010di\u010dka udr\u017e\u00ed hlavi\u010dku a trochu i t\u011bl\u00ed\u010dko. L\u00e9k se mus\u00ed aplikovat t\u0159ikr\u00e1t ro\u010dn\u011b a k tomu mus\u00ed Viktorka taky pravideln\u011b rehabilitovat. Tyto rehabilitace ov\u0161em zdravotn\u00ed poji\u0161\u0165ovny nehrad\u00ed, proto pot\u0159ebuje hol\u010di\u010dka na\u0161i pomoc. Pen\u00edze z podzimn\u00edch Srd\u00ed\u010dkov\u00fdch dn\u016f poputuj\u00ed na po\u0159\u00edzen\u00ed nejr\u016fzn\u011bj\u0161\u00edch rehabilita\u010dn\u00edch pom\u016fcek, a to nejen pro Viktorku, ale mnoho dal\u0161\u00edch nemocn\u00fdch d\u011bt\u00ed, kter\u00e9 netrp\u011bliv\u011b na na\u0161i pomoc \u010dekaj\u00ed.<\/p>\n

V m\u011bs\u00edci z\u00e1\u0159\u00ed pokra\u010duj\u00ed online Srd\u00ed\u010dkov\u00e9 dny. Ty z\u00e1\u0159ijov\u00e9 jsou pro desetilet\u00e9ho Mart\u00ednka, kter\u00fd od narozen\u00ed \u017eije s cystickou fibr\u00f3zou, jedn\u00e1 se o nevyl\u00e9\u010diteln\u00e9 genetick\u00e9 onemocn\u011bn\u00ed, kter\u00e9 postihuje p\u0159edev\u0161\u00edm pl\u00edce. Ty ni\u010d\u00ed trval\u00fd hust\u00fd hlen, kv\u016fli kter\u00e9mu mus\u00ed chlapec n\u011bkolikr\u00e1t denn\u011b inhalovat. V sou\u010dasn\u00e9 dob\u011b je Mart\u00ednek v nemocnici a a\u017e se vr\u00e1t\u00ed dom\u016f, pot\u0159ebuje k d\u016fkladn\u00e9mu o\u010di\u0161t\u011bn\u00ed plic p\u0159\u00edstroj SIMEOX za 185 614 K\u010d. S po\u0159\u00edzen\u00edm tohoto p\u0159\u00edstroje cht\u011bj\u00ed chlapci pomoci online Srd\u00ed\u010dkov\u00e9 dny. P\u0159ihlaste se na webovou str\u00e1nku\u00a0www.srdickovedny.cz<\/strong><\/a>\u00a0a pomozte Mart\u00ednkovi tento p\u0159\u00edstroj z\u00edskat. Za tuto pomoc obdr\u017e\u00edte do sv\u00fdch po\u010d\u00edta\u010d\u016f obr\u00e1zek na\u0161ich sb\u00edrkov\u00fdch p\u0159edm\u011bt\u016f, a\u0165 u\u017e srd\u00ed\u010dko s na\u0161\u00edm logem, obl\u00edben\u00e1 zv\u00ed\u0159\u00e1tka \u010di obr\u00e1zek D\u00e1v\u00e1m srdce d\u011btem.<\/p>\n

Budeme V\u00e1m velmi vd\u011b\u010dni za podporu v tomto slo\u017eit\u00e9m roce, kdy na\u0161e organizace slav\u00ed dvacet let sv\u00e9 \u010dinnosti. V\u011b\u0159\u00edme, \u017ee spole\u010dn\u011b to zvl\u00e1dneme a pom\u016f\u017eeme dal\u0161\u00edm rodin\u00e1m s v\u00e1\u017en\u011b nemocn\u00fdmi d\u011btmi, kter\u00e9 se bez Va\u0161\u00ed laskav\u00e9 podpory neobejdou. D\u011bkujeme!<\/p>\n

Maria K\u0158EPELKOV\u00c1, \u0159editelka o.p.s. \u017divot d\u011btem<\/strong><\/p>\n

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Informovali jsme tak\u00e9:<\/h6>\n

Online Srd\u00ed\u010dkov\u00e9 dny pro Mart\u00ednka. Do sb\u00edrky se mohou lid\u00e9 zapojit na internetu po cel\u00fd m\u011bs\u00edc z\u00e1\u0159\u00ed<\/a><\/h3>\n

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