{"id":202352,"date":"2020-09-06T21:46:14","date_gmt":"2020-09-06T20:46:14","guid":{"rendered":"http:\/\/zakrasnejsivimperk.cz\/?p=202352"},"modified":"2020-09-19T12:46:02","modified_gmt":"2020-09-19T11:46:02","slug":"protext-online-srdickove-dny-pro-martinka-do-sbirky-se-muzete-zapojit-na-internetu-po-cele-zari","status":"publish","type":"post","link":"https:\/\/zakrasnejsivimperk.cz\/?p=202352","title":{"rendered":"PROTEXT: Online Srd\u00ed\u010dkov\u00e9 dny pro Mart\u00ednka. Do sb\u00edrky se mohou lid\u00e9 zapojit na internetu po cel\u00fd m\u011bs\u00edc z\u00e1\u0159\u00ed"},"content":{"rendered":"

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Obecn\u011b prosp\u011b\u0161n\u00e1 spole\u010dnost \u017divot d\u011btem zah\u00e1jila ke sv\u00e9mu 20. v\u00fdro\u010d\u00ed od sv\u00e9ho zalo\u017een\u00ed nov\u00fd projekt online Srd\u00ed\u010dkov\u00e9 dny. Nyn\u00ed se lid\u00e9 do sb\u00edrky na pomoc nemocn\u00fdm d\u011btem v r\u00e1mci cel\u00e9 \u010cR mohou zapojit i p\u0159\u00edmo na internetu.<\/h6>\n

\"\"\"\"Sta\u010d\u00ed otev\u0159\u00edt webovou str\u00e1nku\u00a0www.srdickovedny.cz<\/strong><\/a>\u00a0a zakoupit si virtu\u00e1ln\u00ed srd\u00ed\u010dko nebo obr\u00e1zek se zv\u00ed\u0159\u00e1tky za 30 K\u010d. V nab\u00eddce online Srd\u00ed\u010dkov\u00fdch dn\u016f jsou tak\u00e9 virtu\u00e1ln\u00ed obr\u00e1zky “d\u00e1v\u00e1m srdce d\u011btem” za 100 K\u010d, 300 K\u010d nebo 500 K\u010d. Ka\u017ed\u00fd m\u011bs\u00edc lid\u00e9 mohou pomoci jin\u00e9mu d\u00edt\u011bti.<\/p>\n

Z\u00e1\u0159ijov\u00e9 Online Srd\u00ed\u010dkov\u00e9 dny pat\u0159\u00ed Mart\u00ednkovi, kter\u00fd trp\u00ed cystickou fibr\u00f3zou a pot\u0159ebuje z\u00edskat 185 614 K\u010d na n\u00e1kup p\u0159\u00edstroje SIMEOX na odleh\u010den\u00ed d\u00fdchac\u00edch cest a zlep\u0161en\u00ed plicn\u00edch funkc\u00ed.<\/p>\n

P\u0159\u00edb\u011bh Mart\u00ednka:<\/strong><\/p>\n

Mart\u00ednek se narodil jako dvoj\u010de akutn\u00edm c\u00edsa\u0159sk\u00fdm \u0159ezem, musel b\u00fdt resuscitov\u00e1n a napojen na plicn\u00ed ventil\u00e1tor. N\u00e1sleduj\u00edc\u00edch \u0161est t\u00fddn\u016f byl hospitalizov\u00e1n na jednotce intenzivn\u00ed p\u00e9\u010de, proto\u017ee opakovan\u011b upadal do t\u011b\u017ek\u00fdch hypoglykemi\u00ed a dost\u00e1val infuze gluk\u00f3zy.<\/p>\n

Po mnoha vy\u0161et\u0159en\u00edch sd\u011blili l\u00e9ka\u0159i rodi\u010d\u016fm chlape\u010dkovu diagn\u00f3zu – cystick\u00e1 fibr\u00f3za, kter\u00e9 se laicky \u0159\u00edk\u00e1 nemoc slan\u00fdch d\u011bt\u00ed. V n\u00e1sleduj\u00edc\u00edch dnech se Mart\u00ednek s rodi\u010di a sest\u0159i\u010dkou p\u0159esunuli do motolsk\u00e9 nemocnice, kde se rodi\u010de dozv\u011bd\u011bli, jak pe\u010dovat o miminko s cystickou fibr\u00f3zou.<\/p>\n

Mart\u00ednek dost\u00e1val ka\u017ed\u00e9 dv\u011b hodiny ve dne i v noci vysokokalorickou stravu a p\u0159ed t\u00edm mu rodi\u010de m\u011b\u0159ili hladinu cukru v krvi. D\u011bti s cystickou fibr\u00f3zou trp\u00ed nechutenstv\u00edm, p\u0159esto mus\u00ed dodr\u017eovat vysokokalorickou dietu a p\u0159ed ka\u017ed\u00fdm j\u00eddlem polykaj\u00ed pankreatick\u00e9 enzymy, aby byly schopn\u00e9 v\u016fbec potravu str\u00e1vit.<\/p>\n

Proto\u017ee cystick\u00e1 fibr\u00f3za postihuje p\u0159edev\u0161\u00edm pl\u00edce, za\u010dali rodi\u010de s chlape\u010dkem p\u011btkr\u00e1t denn\u011b inhalovat a pot\u00e9 ods\u00e1vat hleny speci\u00e1ln\u00ed ods\u00e1va\u010dkou s c\u00e9vkou. V necel\u00fdch t\u0159ech letech u Mart\u00ednka prob\u011bhla rozs\u00e1hl\u00e1 plicn\u00ed infekce a doch\u00e1zel na pravideln\u00e1 p\u0159el\u00e9\u010den\u00ed do nemocnice. Na plic\u00edch mu z\u016fstaly nevratn\u00e9 zm\u011bny, v sedmi letech dostal v nemocnici siln\u00fd plicn\u00ed z\u00e1n\u011bt, proto dneska v deseti letech opakovan\u011b podstupuje bronchoskopick\u00e9 \u010di\u0161t\u011bn\u00ed plic a je na trval\u00e9 antibiotick\u00e9 terapii. Mart\u00ednek st\u00e1le p\u011btkr\u00e1t denn\u011b inhaluje, t\u0159ikr\u00e1t denn\u011b prov\u00e1d\u00ed plicn\u00ed rehabilitaci a u\u017e\u00edv\u00e1 trvale velk\u00e9 mno\u017estv\u00ed antibiotik.<\/p>\n

P\u0159es jeho z\u00e1va\u017en\u00e9 onemocn\u011bn\u00ed je Mart\u00ednek velmi \u010dil\u00fd a upov\u00eddan\u00fd kluk. Vesel\u00fd, s velkou fantazi\u00ed a nad\u00e1n\u00edm k pohybu. R\u00e1d jezd\u00ed na kole, ly\u017euje, brusl\u00ed, skl\u00e1d\u00e1 lego a pracuje na po\u010d\u00edta\u010di a tvo\u0159\u00ed vlastn\u00ed videa. Tak\u00e9 je velmi \u0161\u0165astn\u00fd mezi sv\u00fdmi kamar\u00e1dy ve \u0161kole.<\/p>\n

P\u0159\u00edstroj SIMEOX Mart\u00ednkovi pom\u016f\u017ee v\u00fdrazn\u011b zkvalitnit ka\u017edodenn\u00ed \u017eivot. Rodina Mart\u00ednka si v\u0161ak zakoupen\u00ed p\u0159\u00edstroje z vlastn\u00edch finan\u010dn\u00edch prost\u0159edk\u016f nem\u016f\u017ee bohu\u017eel dovolit a bude vd\u011b\u010dn\u00e1 za jakoukoliv pomoc.<\/p>\n

Obecn\u011b prosp\u011b\u0161n\u00e1 spole\u010dnost \u017divot d\u011btem pros\u00ed v\u0161echny laskav\u00e9 lidi s dobr\u00fdm srdcem, aby se do online Srd\u00ed\u010dkov\u00fdch dn\u016f na pomoc Mart\u00ednkovi zapojili nebo o nich dali v\u011bd\u011bt sv\u00fdm bl\u00edzk\u00fdm, p\u0159\u00e1tel\u016fm, kamar\u00e1d\u016fm a zn\u00e1m\u00fdm.<\/p>\n

PROTEXT<\/strong><\/p>\n

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  Obecn\u011b <\/p>\n","protected":false},"author":2,"featured_media":202374,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"gallery","meta":{"footnotes":""},"categories":[69],"tags":[],"jetpack_featured_media_url":"https:\/\/zakrasnejsivimperk.cz\/wp-content\/uploads\/2020\/09\/06\/srd\u00ed\u010dkov\u00e9-dny-titul.jpg","_links":{"self":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/202352"}],"collection":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=202352"}],"version-history":[{"count":6,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/202352\/revisions"}],"predecessor-version":[{"id":202404,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/202352\/revisions\/202404"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/media\/202374"}],"wp:attachment":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=202352"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=202352"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=202352"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}