{"id":171666,"date":"2019-09-22T19:50:09","date_gmt":"2019-09-22T18:50:09","guid":{"rendered":"http:\/\/zakrasnejsivimperk.cz\/?p=171666"},"modified":"2019-09-23T13:13:29","modified_gmt":"2019-09-23T12:13:29","slug":"protext-podzimni-srdickove-dny-od-23-do-27-zari","status":"publish","type":"post","link":"https:\/\/zakrasnejsivimperk.cz\/?p=171666","title":{"rendered":"PROTEXT: Podzimn\u00ed Srd\u00ed\u010dkov\u00e9 dny od 23. do 27. z\u00e1\u0159\u00ed"},"content":{"rendered":"

\"\"<\/p>\n

 <\/p>\n

V t\u00fddnu od 23. do 27. z\u00e1\u0159\u00ed po\u0159\u00e1d\u00e1 \u017divot d\u011btem o.p.s. tradi\u010dn\u00ed Srd\u00ed\u010dkov\u00e9 dny. Dobrovoln\u00edci ze st\u0159edn\u00edch \u0161kol a u\u010dili\u0161\u0165 vyraz\u00ed op\u011bt do ulic sv\u00fdch m\u011bst, aby kolemjdouc\u00edm nab\u00eddli sb\u00edrkov\u00e9 p\u0159edm\u011bty. Tentokr\u00e1t to budou obl\u00edben\u00e9 magnetky se zv\u00ed\u0159\u00e1tky za 30 K\u010d a r\u016fznobarevn\u00e9 propisovac\u00ed tu\u017eky rovn\u011b\u017e za 30 K\u010d. Z v\u00fdt\u011b\u017eku sb\u00edrky \u017divot d\u011btem dal\u0161\u00edm rodin\u00e1m s v\u00e1\u017en\u011b nemocn\u00fdmi d\u011btmi, o kter\u00e9 se jeden z rodi\u010d\u016f mus\u00ed starat vlastn\u011b cel\u00fd den.<\/h6>\n

\"\"Tv\u00e1\u0159\u00ed t\u011bchto Srd\u00ed\u010dkov\u00fdch dn\u016f jsou dv\u011b sest\u0159i\u010dky, Karol\u00ednka a Michalka. Maj\u00ed stejnou, velmi z\u00e1ke\u0159nou a bohu\u017eel nevyl\u00e9\u010ditelnou nemoc. P\u0159itom na za\u010d\u00e1tku, p\u00e1r m\u011bs\u00edc\u016f po porodu, se zd\u00e1lo, \u017ee jsou ob\u011b hol\u010di\u010dky zdrav\u00e9. Kdy\u017e byl ale Karol\u00ednce rok a p\u016fl, za\u010dala se \u0161patn\u011b pohybovat a rodi\u010d\u016fm se m\u011bnila p\u0159ed o\u010dima. B\u011bhali s n\u00ed po nejr\u016fzn\u011bj\u0161\u00edch vy\u0161et\u0159en\u00edch, a\u017e se nakonec dozv\u011bd\u011bli velmi zdrcuj\u00edc\u00ed diagn\u00f3zu. Jejich Karol\u00ednka trp\u00ed vz\u00e1cn\u00fdm genetick\u00fdm onemocn\u011bn\u00edm – mukopolysacharid\u00f3zou. A za p\u00e1r dn\u016f \u010dekala rodi\u010de dal\u0161\u00ed r\u00e1na. V t\u00e9 dob\u011b u\u017e m\u011bli t\u0159\u00edm\u011bs\u00ed\u010dn\u00ed Michalku. L\u00e9ka\u0159i ud\u011blali testy i u n\u00ed a zjistili, \u017ee mal\u00e1 Michalka m\u00e1 bohu\u017eel stejn\u011b jako Karol\u00ednka mukopolysacharid\u00f3zu.<\/p>\n

Rodi\u010de se s touto pro n\u011b dosud zcela nezn\u00e1mou z\u00e1ke\u0159nou nemoc\u00ed za\u010dali seznamovat. Zjistili, \u017ee zdrav\u00e9, v\u011bt\u0161inou hyperaktivn\u00ed d\u00edt\u011b, se postupn\u011b p\u0159estane vyv\u00edjet, ztr\u00e1c\u00ed pohybov\u00e9, pozd\u011bji i komunika\u010dn\u00ed, a dokonce i polykac\u00ed schopnosti, a\u017e je nakonec zcela upoutan\u00e9 na l\u016f\u017eko a z\u016fst\u00e1v\u00e1 ve v\u0161em odk\u00e1zan\u00e9 na p\u00e9\u010di sv\u00fdch bl\u00edzk\u00fdch. Do\u017e\u00edv\u00e1 se pr\u016fm\u011brn\u011b patn\u00e1cti let a\u017e dvaceti let. Pro rodi\u010de d\u011bt\u00ed s touto nemoc\u00ed je velmi t\u011b\u017ek\u00e9 \u017e\u00edt s v\u011bdom\u00edm, \u017ee takov\u00fd osud \u010dek\u00e1 ob\u011b hol\u010di\u010dky. Star\u0161\u00ed Karol\u00ednka m\u00e1 u\u017e dneska probl\u00e9my s pohybem, na mlad\u0161\u00ed blon\u010fatou Michalku tyto zm\u011bny teprve \u010dekaj\u00ed. Bohu\u017eel neexistuje \u017e\u00e1dn\u00fd l\u00e9k, kter\u00fd by je p\u0159ed t\u00edmto tragick\u00fdm osudem ochr\u00e1nil. Rodi\u010de budou pot\u0159ebovat nejr\u016fzn\u011bj\u0161\u00ed pom\u016fcky, kter\u00e9 jim p\u00e9\u010di o jejich nemocn\u00e9 dcery usnadn\u00ed. V tom jim m\u016f\u017eeme pomoci my. Hodn\u011b s\u00edly, energie a osobn\u00ed state\u010dnosti ale musej\u00ed v sob\u011b naj\u00edt sami.<\/p>\n

Pomozte Karol\u00ednce a Michalce na jejich velmi t\u011b\u017ek\u00e9 cest\u011b a kupte si od dobrovoln\u00edk\u016f magnetku nebo propisovac\u00ed tu\u017eku. A pokud n\u00e1hodou dobrovoln\u00edky nepotk\u00e1te, m\u016f\u017eete se pod\u00edvat na webov\u00e9 str\u00e1nky:\u00a0www.zivotdetem.cz<\/strong><\/a>\u00a0a v e-shopu si m\u016f\u017eete objednat ty p\u0159edm\u011bty, kter\u00e9 se V\u00e1m budou l\u00edbit. P\u0159isp\u011bt m\u016f\u017eete pochopiteln\u011b tak\u00e9 zasl\u00e1n\u00edm d\u00e1rcovsk\u00e9 SMS ve tvaru DMS ZIVOTDETEM60 na \u010d\u00edslo 87777. Pomoci m\u016f\u017eete taky zasl\u00e1n\u00edm p\u0159\u00edsp\u011bvku na sb\u00edrkov\u00fd \u00fa\u010det 83297339\/0800 s variabiln\u00edm symbolem 1234.<\/p>\n

\u017divot d\u011btem ze srdce d\u011bkuje v\u0161em, kter\u00fdm osud nemocn\u00fdch d\u011bt\u00ed nen\u00ed lhostejn\u00fd.<\/p>\n

(PROTEXT)<\/strong><\/p>\n

\"\"<\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

  V <\/p>\n","protected":false},"author":2,"featured_media":171674,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"gallery","meta":{"footnotes":""},"categories":[127,107],"tags":[],"jetpack_featured_media_url":"https:\/\/zakrasnejsivimperk.cz\/wp-content\/uploads\/2019\/09\/18\/r\u00e1me\u010dek-srd\u00ed\u010dkov\u00e9-dny.jpg","_links":{"self":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/171666"}],"collection":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=171666"}],"version-history":[{"count":2,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/171666\/revisions"}],"predecessor-version":[{"id":171675,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/171666\/revisions\/171675"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/media\/171674"}],"wp:attachment":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=171666"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=171666"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=171666"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}