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Tv\u00e1\u0159\u00ed leto\u0161n\u00edch jarn\u00edch Srd\u00ed\u010dkov\u00fdch dn\u016f je mal\u00fd Ad\u00e1mek<\/strong>. Jeho mlad\u00ed rodi\u010de si po p\u00e1r m\u011bs\u00edc\u00edch museli vyslechnout od l\u00e9ka\u0159\u016f smutnou zpr\u00e1vu. Dozv\u011bd\u011bli se, \u017ee jejich chlape\u010dek trp\u00ed vz\u00e1cn\u00fdm genetick\u00fdm onemocn\u011bn\u00edm \u2013 spin\u00e1ln\u00ed svalovou atrofi\u00ed. Tato nemoc je velmi zr\u00e1dn\u00e1, nemocn\u00fdm postupn\u011b ochabuj\u00ed svaly a t\u00edm se zt\u011b\u017euje schopnost pohybu. Posti\u017een\u00e9 b\u00fdvaj\u00ed hlavn\u011b nohy, pozd\u011bji maj\u00ed nemocn\u00ed probl\u00e9m s\u00a0polyk\u00e1n\u00edm, p\u0159id\u00e1vaj\u00ed se probl\u00e9my s\u00a0d\u00fdch\u00e1n\u00edm a hroz\u00ed p\u0159ed\u010dasn\u00e9 \u00famrt\u00ed. V\u00a0posledn\u00edch letech se objevil velmi drah\u00fd l\u00e9k Spinraza, kter\u00fd je u\u017e dva roky schv\u00e1len\u00fd i u n\u00e1s a n\u011bkter\u00e9 d\u011bti maj\u00ed to \u0161t\u011bst\u00ed, \u017ee jim zdravotn\u00ed poji\u0161\u0165ovny l\u00e9k hrad\u00ed. Je prok\u00e1z\u00e1no, \u017ee tento l\u00e9k dok\u00e1\u017ee p\u0159\u00edznaky nemoci pozastavit. Spinraza je velkou nad\u011bj\u00ed i pro Ad\u00e1mka. Krom\u011b l\u00e9ku pochopiteln\u011b pot\u0159ebuje hodn\u011b pom\u016fcek na pravideln\u00e9 cvi\u010den\u00ed doma, d\u00e1le mus\u00ed nav\u0161t\u011bvovat speci\u00e1ln\u00ed neurorehabilita\u010dn\u00ed kliniku, kde Ad\u00e1mkovi pomohou svaly posilovat. \u010cty\u0159i t\u00fddny na takov\u00e9 klinice stoj\u00ed p\u0159ibli\u017en\u011b 65\u00a0000 K\u010d. \u017divot d\u011btem o.p.s. po\u0159\u00e1d\u00e1\u00a0Srd\u00ed\u010dkov\u00e9 dny<\/strong><\/a>\u00a0ji\u017e 19 let. V\u00fdt\u011b\u017eek ve\u0159ejn\u00e9 sb\u00edrky pom\u016f\u017ee v\u00e1\u017en\u011b nemocn\u00fdm d\u011btem, kter\u00e9 jsou vzhledem ke sv\u00e9mu zdravotn\u00edmu stavu odk\u00e1z\u00e1ny na celodenn\u00ed p\u00e9\u010di jednoho z\u00a0rodi\u010d\u016f. Zakoupen\u00edm magnetky nebo d\u0159ev\u011bn\u00e9ho kol\u00ed\u010dku p\u0159isp\u011bjete na po\u0159\u00edzen\u00ed r\u016fzn\u00fdch rehabilita\u010dn\u00edch a zdravotn\u00edch pom\u016fcek, invalidn\u00edch voz\u00ed\u010dk\u016f, zdravotn\u00edch ko\u010d\u00e1rk\u016f, na \u00fahradu zdravotnick\u00e9ho materi\u00e1lu, speci\u00e1ln\u00ed v\u00fd\u017eivy, rehabilita\u010dn\u00edch pobyt\u016f a podobn\u011b.<\/p>\n \u017divot d\u011btem o.p.s. d\u011bkuje za pomoc a podporu v\u0161em laskav\u00fdm lidem, kte\u0159\u00ed se do Srd\u00ed\u010dkov\u00fdch dn\u016f zapoj\u00ed. V\u00edce o projektu se m\u016f\u017eete dozv\u011bd\u011bt v \u010d\u00e1sti\u00a0Projekty \/ Srd\u00ed\u010dkov\u00e9 dny<\/a><\/strong>.<\/strong><\/p>\n \u017dIVOT D\u011aTEM<\/strong><\/p>\n<\/div>\n <\/p>\n <\/p>\n <\/p>\n","protected":false},"excerpt":{"rendered":" Studenti <\/p>\n","protected":false},"author":2,"featured_media":155682,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"gallery","meta":{"footnotes":""},"categories":[118],"tags":[],"jetpack_featured_media_url":"https:\/\/zakrasnejsivimperk.cz\/wp-content\/uploads\/2019\/03\/25\/r\u00e1me\u010dek-srd\u00ed\u010dkov\u00e9-dny-jaro-19.jpg","_links":{"self":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/155678"}],"collection":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=155678"}],"version-history":[{"count":1,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/155678\/revisions"}],"predecessor-version":[{"id":155683,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/posts\/155678\/revisions\/155683"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=\/wp\/v2\/media\/155682"}],"wp:attachment":[{"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=155678"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=155678"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/zakrasnejsivimperk.cz\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=155678"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
\nPokud si od student\u016f st\u0159edn\u00edch \u0161kol a u\u010dili\u0161\u0165 zakoup\u00edte magnetky se zv\u00ed\u0159\u00e1tky nebo barevn\u00e9 d\u0159ev\u011bn\u00e9 kol\u00ed\u010dky, pom\u016f\u017eete nejen Ad\u00e1mkovi, ale tak\u00e9 dal\u0161\u00edm v\u00e1\u017en\u011b nemocn\u00fdch d\u011btem.<\/p>\nP\u0159isp\u011bt m\u016f\u017eete tak\u00e9 p\u0159ihl\u00e1\u0161en\u00edm Va\u0161\u00ed \u0161koly \u010di firmy do sb\u00edrky na mail: zivotdetem@zivotdetem.cz, zasl\u00e1n\u00edm jak\u00e9hokoliv finan\u010dn\u00edho p\u0159\u00edsp\u011bvku na \u00fa\u010det: 83297339\/0800 pod variabiln\u00edm symbolem 1234 nebo zasl\u00e1n\u00edm d\u00e1rcovsk\u00e9 SMS na tvaru ZIVOTDETEM 60 na \u010d\u00edslo 87777. D\u011bkujeme.<\/h6>\n
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